Um, hey, peeps…They already have 7 federal members on the “Tick-borne Disease Working Group.” https://www.hhs.gov/…/a…/tickbornedisease/members/index.html
Should the Lyme Disease Association’s Pat Smith be considered a federal member or a public member?
Pat Smith is serving a three-year appointment to the “Programmatic Panel for the Tick-Borne Disease Research Program (TBDRP), a new program in the Department of Defense’s (DoD) Office of Congressionally Directed Medical Research Programs (CDMRP)…” Shouldn’t that disqualify her from an appointment as a public representative to the HHS Tick-borne Disease Working Group? And if so, we already have seven problematic federal members, thankyouverymuch. Boot her off of this “working group.”
In her own words:
“I am pleased to be appointed to the TBD Programmatic Panel to aid in the determination of grant awards for Lyme disease research. With 300,000 individuals acquiring Lyme disease in the US annually, with more than 15 other TBD found in the US, and with a scarcity of research funding, it’s imperative that available monies are used judiciously to address priorities such as a definitive diagnostic test and chronic disease. All programs managed by the CDMRP ‘share the common goal of advancing paradigm shifting research,’ a much welcomed goal for Lyme disease research, which has suffered from enforcement of a rigid paradigm.”
But that’s not all (as if that’s not enough). All Lymish individuals should question whether Pat Smith is fit to represent any of us, AT ALL.
Even though the whistle had been blown a year prior, Pat Smith decided that it was in her and the LDA’s best interest to appear to have played a role in the takedown of LYMErix. Forget the fact that she had never spoken out against LYMErix, nor supported its victims.
Forget that she has never spoken out against LYMErix (OspA) since then–likely because it would have then been common knowledge that she knows OspA alone causes the disease, and that all of her “efforts” over the last 20 years have been purely stall tactics on behalf of everyone BUT the patients.
Clearly this woman is not seeking any real answers for the victims she claims to serve, because she knows what the disease is and yet refuses to talk about it. She proved as much by claiming to have gotten LYMErix off the market. Now she’s sitting on a DoD panel and doling out federal grants. TO WHOM IS SHE GRANTING RESEARCH DOLLARS? IF PAT SMITH WON’T DISCUSS OSPA DISEASE, BUT KNOWS THAT IT’S THE SAME AS CHRONIC LYME, WHAT KIND OF RESEARCH IS SHE PUTTING OUR TAX DOLLARS TOWARD? WE DESERVE TO KNOW.
And now, nearly 16 years after Pat Smith proved that she knew the cause of the disease, she finally got her way with the formation of the “Tick-borne disease working group” and her appointment to it. How long are we going to let this wigged wrecking ball destroy our chances at exposing the truth?
Write to the TBD Committee and tell them how you feel: firstname.lastname@example.org