Some idiot this morning had the gall to tell me in a “private” message that the science saying that “Lyme” causes an AIDS-like disease in the majority of victims is, in his important opinion, “dead wrong.”
I am not here to argue over treatments or whether the well documented model of Borrelia-post-sepsis disease is correct. If you are a Lyme victim, and you claim that this model can’t possibly be correct, because *you* got better with antibiotics, or pot, or whatever…just leave. If you can’t have the human decency or capacity for critical thought to realize that your personal case is not equal to the disease model (i.e. the center of the universe), then have a lovely day and be well.
Just don’t run around telling people that because *you* are better (temporarily or otherwise) Lyme is not so serious as to kill people, disable children, and cause permanent immune system damage. I have zero tolerance for anyone who makes light of this disease to the detriment of those who are mere breaths from being six feet under.
We don’t discuss treatment–not only because nobody, really, is qualified–but for the very reason that everybody has different shit going on. Unless you fix the underlying broken mechanisms, it’s a vicious cycle of opportunistic infections, reactivated viruses, leaky gut, brain inflammation, and all kinds of random and varied horrors that we all read about every day on Facebook. Meanwhile, people are arguing about the science that we present, and wasting time, while others are dropping like flies.
Some have claimed that we say “Treatment is useless.” This moron today tried to bait me into saying, “Don’t treat your Lyme because treatment is pointless.” We do not say that. We say, “Quit debating treatments and talk about the science and how the case definition was falsified to prevent people with an acquired immune deficiency disease from obtaining a real diagnosis and treatment.”
We are saying, “Talk about the ONE thing that is causing this 40-year-plus tragedy to keep destroying lives.”
If you are not evolved enough to see the big picture and realize that someone’s child is doomed to a life of misery, or that a child will lose her parent to this disease, or…name your devastating outcome…over and over and over, ad infinitum….then you have no right to complain to me about our approach of going straight for the bullseye here. NONE. Take your complaints elsewhere.
Complain to Gary Wormser, who has now published at least three times that Lyme is immunosuppressive. Complain to Alan Barbour about being an utter failure despite being widely recognized as the foremost expert on Lyme and tick-borne diseases and owning more patents than God. Complain to Fikrig & Flavell at Yale, who patented both LYMErix (which caused “chronic Lyme” due to it being OspA, a TLR2/1 agonist/fungal-type antigen) and a valid Lyme diagnostic test that will never see the light of day.
Complain to Baumgarth and Barthold at UC-Davis for not saying enough times that this is a B cell disease. “Hey, assholes who are ON OUR SIDE, why don’t you look at whether spirochetes are permanent (yet again, for the 8,000th time) instead of your lame attempts to advance understanding of the disease mechanism.” I’d love to see them put you in your place.
And then, if you’re not quite satisfied with your attempted sabotage of real activism, go and complete one of the LDO/LDA/Pat Smith/DoD surveys on your symptoms and tell the world, “Aw, shucks, this Lyme thing ain’t so bad, because I’m doing pretty well after my last 9 months of antibiotics.” Go right ahead and be a selfish buttface. The next 19-year old who drops dead is on you.
Complain to Allen Steere, who is responsible for the falsified research that is the basis for the existing fraudulent two-tier testing scheme. Complain to Barbara Johnson, CDC officer responsible for the Dearborn conference where the current case definition was adopted despite there being zero consensus from the participating labs. Complain to Mark Klempner, whose government grant fraud to the tune of $4.7 million laid the groundwork for the existing “guidelines.” Complain to the insurance industry, and Pharma, who pull all the strings at our public health agencies to ensure that the millions who are suffering continue to suffer without support or acknowledgement of their disease.
Complain to the DOJ for not protecting us from these psychopaths.
Complain to anyone except those of us who dedicate our own ill selves every single day to the exposure of the Lyme Cryme. Because you’re missing the point, and there are far too many of us who have no time for that.
Categories: Lyme Disease